Rare Cancer Alliance – Information pages on Phyllodes
Breast Cancer Care UK – Links to pages relating to Phyllodes
Answers.com – An informative page
Wikipedia – Phyllodes pages
BC Pals – Breast cancer pals – Links to page explaining Phyllodes.
Breast Pathology Information – Phyllodes pages
WHO Guide to Breast Tumours Oct 2011 – with a section on Phyllodes
A Study of Partial Breast Radiation Therapy after Lumpectomy for Malignant Phyllodes Tumors of the Breast – Richard Barth – There are also links to the 2009 Barth report.
Link to a number of Phyllodes research and published documents SpringerLink – Phyllodes
Phyllodes Breast Cancer – A Rare and Obscure Form of Breast Cancer – Breast Cancer Information
Quantification of the Morphologic Features of Fibroepithelial Tumors of the BreastCancer sites (inc Breast & Soft Tissue Sarcoma) (Information & Reference) – Abstract relating to classification of phyllodes
Rare Cancer Alliance – A wonderful source of information via online forums.
The Scar Project – The project is truly inspirational.
BC Pals – Breast cancer pals – another useful source of information via online forums.
Free prescriptions – UK
Having Fun After Cancer – Verite Reily Collins’ informative and useful site relating to all things cancer
Inflammatory Breast Cancer book by Verite Reily Collins
Follow up guidlines for soft tissue sarcoma
Cancer Research have summarised the UK follow up guidelines here
You should all know….
Trials for Phyllodes
Rare Cancer Alliance – Links to US resources for clinical trials
National Cancer Research Network – Information on trials in the UK
International Conference for Young Women Affected by Breast Cancer (US – 2010)
Annual Conference for Young Women Affected by Breast Cancer – 26-28 February 2010, Atlanta US
Channel 4’s How to Look Good Naked – Episode about Kelly following her mastectomy
Alright Tit – Lisa Lynch’s story and links to her book (I laughed and cried on most pages – sometimes at the same time!)
Bah to cancer – Breast cancer had a pop at Stephanie. It really wishes it hadn’t.
Phyllodes Facebook Support Group
If you have a Facebook account, there are a couple of groups set up by Phyllodes survivors and joined by more of us. Through these groups we are able to answer questions, provide support and share information. Search for “Phyllodes Support Group”
What to wear and where to buy in the UK
Rigby & Peller – Lingerie boutique and all the assistants are trained for fittings for post-surgeries ladies… and they offer some gorgeous lingerie as well a made-specially-for-you offering!
Support lines for survivors
Your Shoes Support Center US – When you need to talk to someone who’s been through it or your partner/family/friends aren’t awake, call these wonderful people for support.
Living Beyond Breast Cancer US – A wonderful source of support and inspiration for getting beyond breast cancer. There’s lots of emotional issues we don’t imagine we’ll run into and this site understands – register for their newsletters too, they appear just when you need them!
Young Survival Coalition US – A very active forum to talk about your experiences.. full of very supportive members.
Imerman Angels US – Amazing support network… if you’re in the US and want support, call them…
Breast Cancer Care UK – Great online forums and links to events and resources in the UK.
Macmillan UK – Links to events, support groups, information and online forum.