There’s a post on the forum answering my question about the sharp stabbing pain.

“I think the pain is probably caused by the op but I have had a couple of bouts of fat necrosis which can be caused by trauma to the breast either in something like a car accident or as in my case with lots of surgery and I have to tell you, you certainly know when you feel that.”

I also received a response from Trisha;

“I got these pains after my 2nd surgery. It’s called “mondor’s disease” which is a fancy way of saying I had a blood clot in my breast. The clot was occluding bloodflow to various veins in my breast which is what led to the hardened “strands” throughout my breast and ribs. After meds for 2 weeks the strands are getting softer and pain is getting much better. I was only on anti-inflammatories and that’s the only treatment. It may take as long as 6 months for the strands to completely soften up. These veins arent going anywhere too important so the chance of the blood clot breaking free and getting into my heart or lungs or brain is not as issue. Easy fix!”

I’d never heard of Mondor’s Disease and have now done some more research on it. I’m not sure if the pain I have is either of the above or more intensified version of the pain I was getting before treatment. BUT just to know I’m not alone and that it will pass has helped enormously.

I received a further email through the forum from Trish which gave me the most enormous support:

“I’m so sorry you’re going through this right now. I used this site to get me through and you will do the same. That’s why we’re here! I’ve even met a couple of friends on here and have met in person. We phyllodes friends have this special little bond, and I’m sorry you’ve found us, but welcome to the family!”

Trish also asked me if I was registered on facebook. I ‘friended’ her.

AND I didn’t cry today. This is the first day that I haven’t cried since Mum died. Yippeee

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