Phyllodes

6 monthly scan results

A couple of weeks ago I visited the Royal Marsden for my Summer 6 month scans – chest x-ray, ultrasound and boob squish. Stupidly (and I should know better) I […]

Home

Glass Memories of Washington

When I visited Washington at Easter, we (Andi, Sam and I) chose an object that I could use to create something in glass. The object we chose was a pine […]

Living Beyond Diagnosis

Sarcoma Support

Sarcoma UK‘s Annual report arrived in this post this morning with a little note “.. you may recognise a certain person inside :-)…” Well there I am! Taken at the […]

Living

Visiting Andi and Washington DC

It’s difficult to describe my trip to Washington DC without gushing too much so I’ll try to make it brief (ish). It wasn’t about visiting Washington DC. Exploring the […]

Home

My Health Update

Well there’s good news and bad news… The good news is that I had my 6 monthly ultrasound and chest x-ray and no sign of any lumps of mets from […]

My health

And also… it was results day!

This afternoon I met with my new consultant at the Royal Marsden to receive the results of my 6 monthly scans. ALL CLEAR! Bring it on… another 6 months under […]

Living

Rip Off Britain

Did you watch it? I did warn you I’d be on your tellybox. Rip Off Britain: Holidays, Episode 4 featuring lots of lovely people and me. The piece I was […]

Home

My very special Christmas Tree

I don’t usually bother with a Christmas tree in my little London flat. Most years I’m heading out to family, too busy or ignoring Christmas entirely. This year though I’ve […]

My health

Genetic Testing

In August 2011 one of my co-administrators in the Phyllodes Support Group posted in the group a request for 1,000 people who had been diagnosed with sarcoma to be part […]

Conferences

Clinfield Conference – speaking!

The Clinfield Conference provides an opportunity for research nurses, allied healthcare professionals and all research practitioners to get together in a formal setting. The Conference programme is put together with […]

Living

A novel way to celebrate 5 years since diagnosis

When Greig Trout, the author of 101 Things to do […]

Home

Five years has passed….

Hi Mum I can’t believe it’s been five years since you left. Sometimes it still feels like yesterday when we watched you close your eyes and go to sleep. Sometimes […]

My health

6 monthly checks – results

Finally I can breathe a sigh of relief, I’ve got the results of this six-monthly ‘active monitoring’ scans. Nothing suspicious! Yipppeeee! Next ultrasound and chest x-ray booked for January. (Mammogram […]

My health

Mammogram time

You’ll remember I recently went for my six monthly scans which are all part of the follow up regimen following my diagnosis with malignant phyllodes and DCIS. You may also […]

Conferences