I’m super early. Day surgery unit is in darkness! BUT admiring the metal work and fabulous stained glass windows behind – feel I need to stay here until it’s light to see the windows better!
Surgery Day
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Category Archives: Phyllodes
Surgery postponed
Aaaaaaaagh
No surgery tomorrow. They’ve got results of heart monitor but not enough time to consider and discuss with right people before tomorrow. Should get a call tomorrow to let me know when surgery will be (and presumably heart results) Sooooooooo pissed off.
Surgery Prep
Surgery was scheduled for next week for boob op. I passed all the tests (well apart from high white blood count) and even my ecg. BUT today they managed to get ecgs from my “a&e adventure” last week!
They’ve tried all day to speak to the cardiologist at the other hospital to pursuade him to see me quickly but blocked from even speaking to him!
<<Meanwhile (I didn’t know about this glitch) so I cancelled a small op planned on my ankle. That’ll be rescheduled for February next year… or later! >>
Sooo at about 5 tonight they made the decision to cancel my op until the cardiologist has seen me/more tests etc. So pissed off. Just want it all to be over.
Taking bets on surgery being scheduled for my 50th birthday!
New surgeon
Appointment to meet my new boob surgeon and hopefully get a date for surgery. Apparently she’s very good and comes highly recommended from my lovely oncologist.
Post scan results
Seen consultant for results of last weeks scan. Operation in the next few months to remove stupid lump…
I’ve asked him to put a zip in so it’s easier if any others pop up later! Hey ho.
Biopsy Results
My biopsy results have been reviewed by Cyril (superstar path at Royal Marsden) and discussed at the MDT meeting along, apparently, with lengthy discussion about phyllodes and our online support group!!!
Decision remains that the biopsy showed benign fibroadenoma. HOWEVER because of my history and weirdness of phyllodes they’ve decided to bring me back in September to rescan, measure and possibly biopsy (although if it’s grown, they may just do surgery and not bother with biopsy again). So all good. Thanks to those asking. I’m quite chilled about it all. I have the bestest consultant and team at the Marsden and I know if I was worrying they’d bring me in sooner. So for now just lots of bubbles required…. always fizz!!
Phuck Phyllodes!
I am officially a weird one!
Results back. Same result as previous biopsy 7 yrs ago that turned out to be malignant phyllodes! It’s gone back to Cyril (the best pathologist) to review again. Meanwhile back on 6 monthly scans (unless Cyril says whip it out)! [yes I did mean my boob!!]
Also I’ve run into some people in the waiting room that I met at cancer conference in Amsterdam that want help with a project and me to present at next years conference! Oooh I’m so important. AND there’s a sarcoma tea party at 4.30… I’ve asked for prosecco!
Phuck Phyllodes!!!
Scan time
It’s scan and boob squish time. They’ve done up the reception area… clearly knew I was visiting!
Results
Results time for my 6 monthly scans. If there’s nothing to report, they say I may go to annual checks!!!
UPDATE
No Evidence of Disease again… Finally I‘m on annual checks! AND my fave consultant made sure he saw me to give me the good news… AND now he’s head of the sarcoma unit here, he’s writing something for our Phyllodes Support Group AND he suggested I get my MRI and X-ray for my odd ankle to him to review. Hurrah!! Calls for bubbles and opera!
Scan time
Time for my 6 monthly mammogram ultrasound and chest X-ray. Already had mammogram. F’ing hurt and that was after 4 Nurofen! All results in a few weeks!
Oh and in other other news the fracture clinic at another hospital have lost my X-rays!
AnnaGoAnna Wallace 