Ouch

I didn’t make the ball with my brother and his wife. I’m gutted as I had really really been looking forward to glamming up and having a good boogie but I really couldn’t have coped with the pain yesterday not to mention a strapless dress. My boob is so sore from the biopsies and bruised but also the lump is incredibly painful it’s making me feel nauseous – I wonder if the pain will dissipate a little once it settles down after being squished for the mammogram. Now we’ve got to wait for the test results.

My mind is sooo active all night and I’m thinking and thinking about so much and what if’s, even the prescription sleeping pills don’t seem to keep me asleep for more than a couple of hours. I think the continual lack of sleep is also not helping me cope with everything. I can’t stop crying. I suppose I’m grieving for Mum and also dealing with anxiety related to the lump but I can’t divide my feelings between them… I just feel helpless. I guess it’s times like this that I wish I was married or had a long term partner to confide in and who understands my innermost feelings. Someone who will give me a hug and make me feel secure and safe. Isn’t this what your Mum’s for at times like this?

Hospital tests

The 4th September felt like the longest day in history. My appointment began at 9.45am with my first meeting my consultant. In my usual way, I hid my anxiety with a mixture of smiles and jokes. I had convinced myself that I was going to be wasting their time and almost apologising for it. I introduced myself as a ‘lumpy bumpy’ sort of a person who has had a number of cysts and moles removed over the years but nothing to worry about and this would probably be the same. My consultant asked me if there was any history of cancer in my family to which I replied with a confident “No but remember we are a lumpy bumpy family, but no cancer”. He checked my breast and advised that I would now be sent through for a mammogram and possibly an ultrasound and to go back to the waiting area until called.

I was eventually called through to the mammogram area of the hospital at the same time as another lovely lady in her late 50s. I quickly realised how frightened this lady was and it took all my NLP skills to remain calm in myself and offer support to this other lady.

This was the first time I had had a mammogram and found the whole experience excrutiatingly painful. I’m not sure if it was necessary for the nurses to be quite so brutal and to pull my breast between the sheets of plastic nor to twist the plates tighter to squash my already painful breast… but it was necessary (although this piece of equipment MUST have been invented by a man!). I knew that I had to remain calm and pretend that it was a breeze so that my new friend was less nervous about her mammogram. I think I managed it.

I then waited for confirmation that the mammogram was clear enough and if I needed an ultrasound. After an hour or so I was taken to another room and a radiologist conducted an ultrasound – a much more pleasant experience.

Back to the waiting area to be called to see the consultant and get the results of my tests. My new friend and I sat and talked about anything but what was happening to begin with and then shared our common interest in why we were there. I think this helped calm my friend but made me more nervous. I had laughed with the consultant and again with my friend that I was meant to be going to a ball this evening and my dress didn’t go around my bust so unless I could have a quick reduction that day, I would need to purchase a new dress in the next few hours!

Eventually I was called in to see the consultant. He advised me that the mammogram had indeed shown a lump but the ultrasound indicated that there was another small lump underneath. He thought the scans indicated that the lumps were a fibroadenema and would send a biopsy sample to the lab for testing. In order to get a good sample with both lumps being included he had to take three deep core biopsies which left me sore and bruised.

I had to talk to someone and called my friend Millie to ask if I could call in. Once again I fell apart on her and Mark, her husband, whilst I told them about my day and my worries with their finding a lump. They’ve been so fantastic at looking after me, with Mum and now this. I’m so very very lucky to have such wonderful friends but am longing for a time when I don’t fall apart in tears or feel that I’m being totally self-absorbed with problems in my life!

Millie makes me promise that no matter what, if there’s an operation, I am to move in with them and be looked after until I’m well enough to leave. I’m not allowed to leave until I promise. This is such a blessing and actually a huge relief to know that I’m not alone. It is odd, I have so many good friends and lots of family around who are very supportive of me in everything I do but at times I just want to hide and pretend it’s not going on or don’t want to burden people with my problems so simply make light of them and appear that everything is well when inside I hurt. Another lesson that I’m going to have to learn in all this is to be honest and up front about what I’m feeling and what I need… and ask for help, if I need it instead of being so bloody minded and independent. That’s a tough lesson for me…

The hospital call

My mobile rang at 7am and blurrily I took the call. It was the hospital calling to say they’d received a fax from my doctor and wanted to arrange an appointment as soon as possible to check out the mystery lump. The appointment was made for 4 September – I week away but I think I’m going to be grateful for my sleeping pills!

Doctor appointment

I am so lucky to have the best doctor in the world.  He knows that if I ask about something there is a genuine reason why I’m asking, he also knows my history over the past 20+ years.  So when I said that I’d found a lump but dismissed it with a comment about it probably being due to stress, he told me that it would still need looking at.  He checked my breast and although I saw a flicker of panic on his face, remained calm when he said that he’d refer me but not to worry.  He went on to give me a prescription for a few sleeping pills because knowing me, he said he knew I would worry!
Should I have called the Doctor earlier – YES!  Lesson learnt – please seek professional advise as soon as possible if you find a lump.  The sooner you get it checked the sooner you can get it gone!  AND if you don’t check your boobs, please do so regularly.  Ask your nurse or doctor if you’re not sure how to but please check.  (nag over!)  If you don’t feel you can ask for help use this guide but please please check www.womens-health.co.uk/breast_exam.html

Finally I call the Doctor

Hindsight is a wonderful thing. I should have seen my doctor sooner but I was determined that the lump was ‘just going away’. Surely it had been down to all the upset and emotion with Mum’s death… surely it was just due to my hormones being all over the place… surely it was anything other than cancer – right?…

During a meeting I find myself taking a sharp intake of breath whilst there is a piercing pain in my right breast. Can I ignore it? (as I’ve done so many times before) I’m thinking to myself, I just need a holiday and relax, surely it can’t be anything else.

I call the doctor’s surgery and speak to the lovely receptionist who immediately takes me seriously saying that of course I should see the doctor as soon as possible. She’s squeezed me in for an appointment in a couple of days time. I’m so relieved to be seeing a professional but am still convinced that he’ll just say it’s nothing, don’t worry.

Mum’s funeral and the lump

Mum’s cremation and thanksgiving service is arranged for today. Fortunately during the final months I had been able to discuss with Mum what she would like so when it came to the arrangements it was easy. I knew that we’d got it right. We even managed to get ‘Look on the bright side of life’ playing at the end of the service (as requested). I can totally advocate telling someone what you’d like in advance. I’d like my body to be given to medical science – they might be able to find a reason why this cancer attacked me! If not, cremation please but don’t bother with the expense.. spend it on a party! Ashes to be scattered in Berkeley Square, London and a bench to be placed with a simple plaque to identify it… you’re all invited to come sit and enjoy my favourite peaceful place… I just love that place.

I digress. On the morning of 20th as I’m getting ready for the day ahead. I’m nervous and scared that the day will go OK and get dressed in lots of colour (No Black requested by Mum!). I felt a little pain in my right breast and on rubbing the pain away discover a lump. Now I have to confess I don’t (as suggested by all the health organisations) check my breasts regularly so am not sure when the lump arrived or if it’s got larger quickly etc etc. I texted a friend in a panic (it was 6.07am) “Ohmygod, stupid question to ask a boy but do glands play up when upset? cos I’ve found a lump in my boob…“. He replied with “EVERYTHING plays up at times like this, Stress and trauma cause all sorts of things. Forget about it for today and tomorrow and see how it is after the weekend. 95% of boob lumps aren’t anything, but if it’s still there next week share it with your doctor”.

I then put this to be the back of my mind in the hope that he was right and would deal with it if it hasn’t gone in a couple of days. Besides I had to get on with my mothers cremation and memorial service… I’m too young to lose a parent let alone have cancer… and we don’t have cancer in our family, so of course it must be hormonal or emotional or just something random… maybe I’ve bashed myself and it’s just a bruise.