FELA! at Sadlers Wells

SADLERSWELLSPRESENTHITMUSICALFELATICKETSNOWONSALEI didn’t know the story of Fela Kuti before tonight.  Fela was a Nigerian musician that shaped and changed future generations.  His music is crazy, buzzing, fun, lively, energising and engaging.  I can totally understand how he was able to influence people and become a political activist.

The show Fela! is representative of his life and journey through his music and dance.  You can’t help but tap feet and, if you feel so inclined, get up and dance!  A hugely high energy show but with a strong storyline and truths behind it that you can’t help feel drawn in by the messages.

We were fortunate enough to be there when Femi Kuti, the son of Fela, was in the audience.  Amazing evening.  Such a shame it had to end.  YouTube of this special encore

I’m quite sure this show will run and run.  Go see it!

Sadlers Wells info and video
Evening Standard Review

Paris

I’ve been to Paris many times but not for quite a few years so when British Airways ‘suggested’ I visit, I agreed and booked my flights.

I chose to wander the Paris streets.  For the most part I’d visited many of the ‘destinations’ so figured that a good walk and wander turning left and right would lead me to places I’d not yet discovered.

Paris1And a few new ones, such as a visit to Mariage Frères – Maison de Thé à Paris for a delightful spot of lunch.

Mariage FreresAlso to the Tea Museum

Paris2To the Pompidou Centre

Paris3And the brilliant sculpture park next to it (every City should have one of these):

I’m remembering another time in Paris.  Probably about my fourth visit here… with a man. I’m still not sure if he intended it to be a romantic break.. I’m rubbish at these things… so let me explain what happened – do try not to laugh (at me!).

He (let’s call him P) invited me to Paris for the weekend. He premised it by saying that he had managed to score first class Eurostar tickets really really cheaply and would I like to join him. Well I didn’t give it another thought. First class Eurostar tickets, cheaply and to Paris.. well you would, wouldn’t you? I didn’t question anything else. He said he’d organise everything. So we went after work on the Friday. Eurostar had only just started operating then and I didn’t know anyone who had been on it. We had a first class dinner on board with some lovely wine and great attention from the staff. Arriving in Paris in good time and heading to the hotel that P had arranged. Even when we got to our room it hadn’t occurred to me that this was anything other than two mates going away on a cheap ticket to Paris. When I questioned the double bed and asked if there had been a mistake, P looked a little crestfallen. Oh dear. He sorted out a twin room and nothing more was said about it. I still don’t know if I read it wrong. I still don’t know if it had been a genuine mistake. I still don’t know if his intentions had been different. I need more of a clue than that.. in fact I need Fred Flintstone bashing me over the head to let me know what the gig is…  But that’s all I remember of Paris on that occasion… I know we must have done things, seen things, met up with people etc but all I remember is being mortified that I had messed up big time and worried about our friendship. I wonder….

On a completely separate occasion/tangent a man (N) flew from London to Sydney (where I was living at the time) to take me for dinner…. it didn’t occur to me that it was Valentines day… nor that he would be doing it for any other reason than he was to be in Sydney for 24hrs. Again it wasn’t until afterward when a friend virtually slapped me and gave me a look as to question my sanity, that I wondered if the intention had been anything other than dinner with a friend in Sydney. Doh!  He was quite delicious too… messed it up again?

On this trip to Paris, I noticed very strongly that the French are still smokers. By that I mean that nothing appears to have changed. It has in the rest of the world. Most countries now you can’t smoke where food is being served. Here every table is set up with an ashtray and most tables are occupied by smokers. My hotel room has an ashtray and there was never any question about a smoking or non-smoking room. On most streets, people are wandering along with a cigarette on the go. It’s all ages and both sexes. I’m amazed that nothing has changed and so openly you can buy and smoke wherever whenever and with whomever. Is that a bad thing? I guess it’s just something that we’ve got used to in Australia, England and the USA… I’m sure in other countries too but it does seem at odds with a world I know now, to see people smoking so openly. I don’t miss it smoking one bit though.

Another observation from this trip is the amount of small dogs there are. They’re everywhere. Ladies carrying them in their handbags, on their laps, under their arms and taking them into every store, shop, restaurant or bar. I understand pets. I grew up with a cat, a dog, rabbits and lambs but our pets were able to walk themselves! I don’t get it. I really don’t.

There’s something I find wrong about going into a good dress shop and finding a small dog at my ankles sniffing the hem of a dress. Or in a restaurant, looking over and seeing them occupying a seat at a table.. or on the metro, a small dog taking up a seat whilst someone stands up. Surely that’s not right… is it?

OK I’m on the Eurostar back to London. I have to say I’m looking forward to returning home. Even typing that feels strange for someone that is always looking for somewhere new to explore. I wonder if that is why it feels so right… I’ve explored Paris before and it held nothing new to me… in fact I think it disappointed me. It felt overcrowded, dirty, frenetic, uncaring and ‘difficult’. Gosh that sounds scathing and I hate myself for saying it as I’m sure that many places that I love and have loved could be described in a similar way to other people. For the sceptics out there I’d like to also add that I did go off the beaten track, I walked around areas that weren’t on the tourist map, I did my left or right thing often and I went to the end of the metro line on more than one occasion to see if there was more ‘local’ kindness than in the centre. All I found was people being busy, a rudeness that I’d not experienced in France before and an unwillingness to be friendly. Such a shame that they’re obviously so busy with their own lives to consider that ‘the foreigner’ may be of interest to them or find something about them interesting!

So home time.

The Festival Virgin

I’ve got to 43 years of age and never been to a music festival… that is to say the sort of festival where one camps, shares toilets, doesn’t shower and generally prays for good weather… but not too hot so as to avoid hot and sweaty nights without a cold shower or any respite!

So when Shellie said she’d like to go to the Henley 80s Rewind Festival but that the friends she’d gone with previously weren’t able to go this time, I thought to myself… 80s… there’s going to be slightly older people… who perhaps know how to use a public toilet… who perhaps won’t get blindingly drunk and throw up everywhere.. and in Henley, which I know and perhaps where I can blag a shower, if need be or a place to stay if it’s really that muddy or horrendous weather wise…. so I agreed!

Rewind-Festival-2011-Logo-300x217

More than the above though and not being a ‘seasoned’ festival goer, which apparently is an assumption that by my age, I had no idea what I needed to take nor really gave it much thought… until Shellie called me 2 days before with a list of what she was thinking about taking and asking what I had!

Errr I had a tent. Well that is to say I’d bought a 2 man tent a few years ago.. a funky groovy tent that I’d figured I’d be using with the kids in the garden over that summer.. it was still in the bag, never put up and never tried. But it was a ‘paint your own’ tent and that had to be a fun kinda thing to do, right? Or is that the fun kinda thing that ‘young festival goers’ do? Well this is my chance I thought. So that was in. Shellie then asked about food and cooking equipment and kettles and stuff… ahem, don’t you just call room service for that stuff? Loo roll? Surely that comes with the toilets? Sanitiser gel? Surely we would wash our hands? Oooh I’m really not equipped at all… but I know the campsite isn’t far from the town, so worst case scenario I’m sure I can nip to Waitrose!

I arrive at the campsite an hour or so before Shellie. She has the tickets so I can’t even go and bagsy a spot to put up the tent – not that I’d attempt it on my own anyway (I don’t think!). Whilst I wait at the entrance for Shellie to arrive with the tickets I note that people are moving in small mountains of equipment via trolleys, back and forth. Blowing up double layered mattresses in the car park and walking through with them. And camping gas equipment and food supplies a-go-go. Hmmm feeling utterly inadequate for my adventure… hope Shellie has some of this stuff with her! (I do have loo roll though!)

By the time Shellie arrives there is very little camping space available and I’m grateful for our little bijou tent for two. We find a spot to pitch our tent between others and our vista looking out onto another patch of grass that we perceive as our chilling out spot. Shortly after we manage to erect our tent (surprisingly without too much trouble) our new tent neighbours return and open up the door to their palatial mansion. Our little tent could fit in their tent lobby! They have 3 bedrooms (errrr tent language = pods), a whole kitchen (well 2 camping gas, ‘camping pantry’ and a bulging larder of food and drink). After a very short while we make friends with them and they help decorate our tent with the addition of some tulips… I’d managed to paint my name and a picture on one side; Henley Rewind Festival 2011 on the front; and Shellie had prettied her side in blue paint.

Rewind 2011 tent

It wasn’t long into the tent erection that Shellie had cracked open the wine box and we had started drinking. Fatal for me these days… I hardly drink and if I do, am now a very cheap date, getting piddled on a couple of glasses. But this was a festival. My first festival. Surely I could pretend I was in the 80s again and my alcohol tolerance was higher! Oh dear!

So the event had started and we shared our neighbours nibbles with our wine – me being grateful for the little bit of nourishment and remembering (probably too late) that I had in fact not eaten anything that day! Ooops but perhaps more like the 80s than I care to recall!

Being the novice that I am, I simply head off following the crowd and not at all sure what to expect. I had, of course, known that the actual festival didn’t start until Saturday and therefore had assumed (incorrectly) that we would pitch our tent and then head into Henley for a meal… hahaha how naive I am at my first festival. So when, following on sheepishly, we come across the ‘party area’ at the festival I’m a little surprised but go with the flow. It’s not long until the music starts up and it’s karaoke.. lots of people get up to sing loudly along to 80s music and the rest of us (now dancing on the picnic tables) are singing along (ahem) with them and boogying. Fortunately, and I think this may have saved me, I dance a lot and David (one of our new tent neighbours) manages to buy some big polystyrene containers with some chilli and rice in them. Not sure that in the cold light of day I would call them chilli and rice but hey… a bit of stodge was probably exactly what I needed.. and managed to shove down a few mouthfuls very gratefully.

I poured myself into the tent around midnight… not a terrifically late night but definitely worse for wear. As the festival novice I’d made the first faux pas. Don’t get drunk when the toilets are totally grim to sit on let alone look down for a quick chuck! Bearing all that in mind when the booze wore off and I realised that I was in a hot and sweaty ickle tent feeling decidedly unwell, desperate for either a pee or a vom.  Not a great start to a weekend of camping. Oh dear what must our new tent neighbours think of me.. and oh dear didn’t I see some of my old colleagues last night when I was dancing on the table too… and oh dear did I swear a lot? Oh generally.. oh! Not so early in the morning, I crawled from the tent out onto a rug outside the tent in my PJs and unable to face food or drink. Our neighbours were making sausages and scrambled egg… tea or coffee was on offer… but all I could do was feel remarkably sorry for myself and try hard not to be sick.
An hour or so later, our tent neighbours having left to go home for a shower, I suggested to Shellie that we walk along the towpath to Henley for a bite to eat and a clean toilet. It was a slow walk and one that was accompanied by a bottle of diet coke – I find the fizz always helps.

A lovely salad, large fizzy water, a sit down, splash of faces and, of course, toilet break later, we topped up on provisions (replacement box of wine for one!) and went to head back to the camp… and then the rain came! Well I guess it wouldn’t be a festival if it didn’t rain… but me being me, I’d left all wet weather gear firmly in London having resolutely decided that it would be good weather all weekend. Henley had sold out of any rain ponchos, rain coats or anything vaguely festival dry gear… so we bought some bin bags and fashioned ourselves some dapper outfits to keep dry.

As time was marching on and China Crisis were due to be on at 2pm we decided to head for the river taxi to get back to camp.. besides it was still torrential rain and we had heavy wine to carry (ewww the thought of drinking the wine, really wasn’t high on my agenda, but hey!). 1.5 hours later we managed to get on a taxi – we weren’t the only ones who’d had the idea – making it back to the campsite after 2pm.

The rain started to ebb away and the sunshine sneaked out from behind a cloud… we headed toward the arena to find a spot and watch the music acts. After a short while we found our neighbours and made up a fabulous party with them sharing our wine (smuggled in)… I however was on fizzy pop, still unable to face wine.

What an absolute hoot the festival was. As I looked around it was evident that there were a few interlopers but the majority of people there were late-30s-50s in age, slightly rounded around the middle, not afraid to sing out to the chorus of every song and importantly just simply letting down what was left of their hair!

Importantly though I was astounded at the manners and kindness of most people there. When you tried to get out to the bar or for food and stepped around people’s picnic rugs, people would talk to you or have a giggle with you and nobody seemed to mind when you had to nudge them out of the way. There was general sharing of drinks and even of general space.

Something that amused our group was that Shellie, who was by now tucking into the vodka, snuck in disguised as a bottle of water, was making ‘friends’ with everyone. It was hysterical, she would wander off to a neighbouring party and chat away to them as if an old friend. Even more amusing was when she would be going to the bar or the toilet we worked out her way of finding her way home was to mark her territory as she edged through the crowd… no not peeing on everyone but by chatting to them and during conversation pointing back to us, perhaps telling them she was with our group. When she would return later, she would find these people and stop for a chat with them… during which time we would see one of their party point in our general direction, perhaps trying to usher her back to us… but instead ushering her to next marshall point where the same thing would happen. I’m quite sure she’s made a heap of new friends… but I’m not quite sure if she’d remember who they were, even if they quite clearly would remember her. I have to say though that the funniest one was on the final day when a lady who’d been in a group in front of us was seen holding Shellie’s hand and escorting her back to our party – it wasn’t until she’d done that and then left again that we realised she’d not even been coming in our direction but had accompanied Shellie for the good of her health!

The funniest part though is that I really don’t think Shellie knowingly marks her route, more the homing pigeon instinct at a festival.

The final day of the festival I felt remarkably better than I had the day before… probably due to my only being able to face a couple of small vodkas on Saturday and waking up without a hangover in the bijou tent. It was also a huge bonus to know that we were to head off with our new tent neighbours to Helen’s house for a shower and brushup… I know that of course we weren’t terrifically dirty and actually looked relatively respectable but we’re used to showering/bathing every day so to go without somehow seems dirty. Strange really but I guess that’s what we’re used to. I also can’t tell you how brilliant it was to also use a toilet that flushed and be able to know that you weren’t sitting on top of a pile of other people’s p**.. what joy… what simple pleasures!

On the way back to the campsite we collected some sausages and other breakfast fare for cooking with our neighbours on their camping gas. Sort of amusing that we were at ‘home’ with an oven and hob and washing up sink etc but we determined to take everything back to the campsite and do it as if we were camping… hey we were camping, just a couple of little luxuries, like a shower and P spot! Definitely another huge advantage to having met such fabulous tent neighbours. Can’t thank them enough x

Sunday’s lineup was huge – well if you’re from the generations that remember the 80s that is. Once again we were drawn into the music, danced our little feet off and sang to all the choruses and drifted off to the 80s and memories that had once been such a valuable part of our lives. Sunday however was blisteringly hot. Sunburn-a-go-go despite us having covered ourselves, sensibly, in factor 30.

Rewind 2011

Another observation was that there were children post-80s generation at the festival. Some were with their parents and quite clearly had been ‘educated’ on the 80s songs… in fact scarily knowing more verses and words than we did… and probably more in tune than we were too. But then there were others… who were there of their own choice. Perhaps because it was a festival. Perhaps because they knew the songs… but probably because they knew the songs second or third time round! Hahaha how many tunes have been released by a newer artist since the 80s and the ‘kids’ think they own it? Don’t you love those conversations when you’re questioned by a youngster about a song with the rolling of eyes assuming that you wouldn’t know it cos you’re old… and then doubting that it could possibly have been a song sung by anyone other than the new band…. but there were quite a few youngsters who were there singing along and I did overhear someone say ‘this is XYZ’s song’ implying that their band had it first!!

The crowd was thinning out during Sunday as people headed home, ready for work on Monday. What a shame to be part of the festival but to in fact miss a large part of the music on the Sunday night.. and of course miss the headline act. When we had returned to the campsite after our showers we noted that there were lots of space in the campsite, people ferrying back and forth with packed up tents and camping equipment, moving cars nearer the field exit so that they can make a quick getaway when they’re ready to go… also quite probably aware that the rain of the day before had mashed up the field somewhat and anything less than a front wheel drive or 4-wheel drive may have difficulty escaping if the rain comes again.

As Shellie and I collapsed into our tent on Sunday night we felt exposed to the elements far more than we had done. Our bijou little tent had nestled in amongst the grown up festival goers tents… but now most of them were gone and we had big blank field space around us. However as we woke in the morning (without our tent neighbours and their welcome cups of tea), we realised that in fact a great many people had in fact stayed on and there were plenty of people there… the downside to this was simply that the toilets hadn’t been emptied, expecting people to go home, and making it more revolting than you could possibly think… Shellie braved it… I decided not to drink anything in the hope that I could survive until a flushing loo presented itself! I know I’m a woose. But honestly I gag at the slightest yuckiness. All my neices, nephews and small people in my life know that Auntie Anna doesn’t DO bottoms! Seriously I love the kids but don’t leave them with me until they can wipe their own arses!

Another big bonus to our staying on until Monday (as well as being at the whole festival) was that the sunshine of Sunday had dried the field out, our tents and sleeping gear wasn’t dripping wet AND our exit didn’t take an age. Tent neighbours, Helen and David made mention that their exit the night before had taken them 1.5 hours go less than half a mile! But then again they had been able to have a shower and get into a bed!

So will I do it again?

Yes, absolutely.

BUT, will be more prepared and take food and drink with me; not to drink quite so much on the first night and pace myself; get a bigger tent so that if it does P with rain we can at least stand up or host a little soire in comfort; also will arrange somewhere to disappear to for a shower and pee every morning. Hey, at the end of the day I am an old bugga and need some mod cons…. at one point I did think that perhaps I could stay in the town in a hotel but that’s not the fun of the festival, is it?

So would you go to a festival?

My Bench

Several months ago my Godmother put in an application for me to have a bench in Berkeley Square. You may recall that I mentioned that I’d love one in a few blog entries on herehere… and here

I had a call from my Godmother to say that the application for the bench is nearly finalised. They’ve told her that it could be there within the month. Honestly my heart raced when she told me.. I can’t believe it’s actually going to happen.

If we’d looked at my bucket list and had to mark them down in the order of ease to complete, this would definitely have been bottom of the list with a ‘wish it would happen but know it probably never will’ marked against it.

So to think that soon there will be a bench in Berkeley Square with my plaque on it, for everyone to enjoy, is totally amazingly, fantabulously, brilliantly brilliant. I think I shall have to have a ‘bench opening party’ with perhaps a ribbon to cut and a glass of champagne to enjoy when it’s finally there.. I do really hope that you will all take a few minutes to go to Berkeley Square, seek out my bench, sit, enjoy and share my little place of calm with me.

2 years and 2 days on

It didn’t go unnoticed, by me, that on Saturday 20th August 2009 was the day that I found the lump that has caused me so much anxiety, sense of loss and belonging together with a feeling of being so alone. I remember so clearly the moment as I was getting ‘ready’ for Mum’s funeral, changing in and out of outfits and adjusting myself when I felt that lump (which then became lumpS). I remember that moment of sheer panic and fear, that moment of anger that Mum wasn’t alive for me to go to for help… instead in a few hours time we would be at the crematorium turning her earthly body to ash. I don’t know if I’ll ever forget that moment or, like other moments in this journey, when the world seems to suddenly turn black. That moment when I can’t see any light to run toward or any chink that makes any sense or demonstrates that there is life and light beyond.

So two years on I did something very different. I went to a music festival with a friend. Shellie knows me well but didn’t realise the significance and I didn’t tell her either. I guess I needed to prove that I could do something new, exciting, positive and fun. Prove it to myself. With people who wouldn’t be worrying about me and what was going on in my head… and I did it. I really did it. OK so I drank too much on Friday night. I danced like a looney-tune and I probably embarrassed myself… but I didn’t let the darkness in. I remembered how to forget. I sang in a loud (probably out of tune) voice along to the sounds of the 80s on the Friday night stage for camping festival-goers. And then I collapsed in my tent and slept soundly until the morning.

OK OK, much like my time in the 80s I woke up with a raging hangover, feeling queasy and unwell. Perhaps also a little maudeline and quiet but grateful for the company of Shellie and our new tent neighbours with whom we’d launched our company upon on Friday night and had a great night with. Everyone else was chipper and late morning Shellie and I headed out for a walk along the river. The music festival (Rewind Festival) is held in Henley, my local town when I grew up. A place that I used to go with Mum and where many memories were held – good and bad. Walking along the river and through the town was good, cathartic in a way but one that I could only flash through in my mind whilst we wandered. I’d still not told Shellie or the others the significance.

I didn’t drink on Saturday and danced and sung along (perhaps slightly more in tune) to the hits of the 80s. Memories flooding back but all safely in my head.

This was my first foray into Festival going. I loved it… mostly. No I really loved it… the only part I wasn’t keen on was the sanitation issue with portaloos and very few showers (and a 2.5 hr queue for a cold shower!). Beyond those issues the rest was blinking brilliant. Danced, sang, laughed, chatted, giggled and generally had a ball. With Shellie but also with old and new friends… I even hope to go back next year.

I guess what I was trying hard to do, and I think achieved.. ‘best foot forward’… ‘onward and upward’ etc etc

I’m getting there… but there is a niggle in my head. There was at the festival, as there often is, a friend trying to match make me, concerned that I’m not in a relationship and convinced that I should be. Looking around for my ‘perfect partner’ and then quizzing me on my intention. I don’t think I notice men in a ‘relationship’ way any more. I notice them as being someone who I’d like to spend more time with. Or perhaps someone who I have a great deal in common with. Someone I enjoy being in the company of. But I’ve switched off anything else. Last night as I tried to get to sleep in the cold tent, I spent many hours thinking it through, having been quizzed heavily during the evening. I don’t know if it’s because I don’t think I’m good enough; I don’t want to inflict myself upon someone because what happens if the cancer does come back; I don’t know if it’s because I can’t put myself in the position of being knocked back and rejected; I don’t know why.. but I think right now, I’d much rather enjoy someone’s company, have a laugh, enjoy life, do things together without any expectation but mostly have fun. I don’t know… but I do know that I don’t know!

Fizz, Fizz, Glorious Fizz

Many people have commented on my Facebook account about my enjoying the odd (ahem) glass of champagne. My comments have often been that it’s Champagne Monday, Bubble Tuesday, Fizzy Friday, Sparkly Saturday or similar throughout the week… there’s a reason for every day without too much thought or rhyming.

And yes I have been enjoying a glass or two… and I make absolutely no excuse for doing so. I hope I’m not being showy or flashy… I also am not being extravagant or outrageous… why?

Over the years I have been given many bottles of champagne, sparkly or fizz. Some as a thank you, some as a gift and always because people know that I like fine wine and fizz. However like many people I’ve put it away whilst saying that old familiar phrase ‘I’ll keep it for something special’….

Every day should be celebrated in some way. With a glass of champagne; something fun and frivolous; a hug or a telephone conversation with someone you’ve not spoken with in a while; a shared joke; a dance in the rain; a jump in a balloon room; or a smile with a stranger… whatever YOU do to celebrate remember that every day is amazing and that each and every day YOU deserve something special.

If the past couple of years has shown me anything… it’s something so simple… that every day is special… and I, for one, have learnt with every sip of champagne to be thankful for every day, for everyone in it and all that the day brings.

[PS Soon the champagne stock will be depleted and I’ll be posting pictures of sparkling water!]

Edinburgh

Edinburgh August 2011I’ve escaped for a few days to see my Little Bro and his family in Edinburgh.  This really is a stunning City in the sunshine.. actually it’s a stunning City any time of year but don’t tell everyone!

An evening soiree with my brother’s friends as a belated celebration of his 40th birthday.  Great company, lots of laughs and a fair bit of vino!  As the house is full I’m camping in with the girls.  Great fun… except when they decide that 3am is time to play!  To keep them quiet and in the hope that if we don’t leave our room we may get back to sleep, we opt for photo time!  Awww (my head hurts and I’m tired!)

Edinburgh August 20113 Edinburgh Festival is on and we’ve got a number of shows that we’re going to see.  Some as a family, some just me and the girls and some for just Iola and I.

The following day and with a rucksack full of picnic goodies, Iola and I head into town.  I’m so impressed that this young girl is able, and wanting, to stop and sit and take in street shows along the way.  We stop to watch comedians, jugglers, musicians and people doing I’m not quite sure what.   Eventually we make it to the top of the Royal Mile and go to an organised ‘bubble’ show.  Who’d have thought that children could be contained within one enormous fairy liquid bubble?  Or that the bubbles could have straight edges and sharp corners?  Amazing show, lots of fun and kept us all enthralled.

Heading back down the Royal Mile we stopped for a food break and sat down in front of where a show was beginning to start.  We were at the front as the crowd behind us grew.  Noone mentioned any age restriction nor thought it possible on a public thoroughfare.  Anyway after a while I’m shuffling around in my seat and aware that others are taking small people away from the show.  Adult content surely covers ‘violent’ reenactment?  I distract Iola with lots of goodies and we have little chats and point out other things in the distance.  We’re stuck at the front of the crowd with no obvious way out!  After a several minutes of discomfort Iola announces ‘quite loudly’ and with a big grin on her face – “I’m not sure this is appropriate for me, Auntie Anna”!  Haha the crowd parts and we depart!

On the way back home we stop off at other shows (child-friendly).  We see juggling chainsaws (where Iola announces that ‘Dad could do that’!).  Stop off to buy Iola a longed for pair of flipflops and one final stop at a balloon creator… a monkey for a monkey.

Edinburgh August 20112Celeste is the proud owner of a new scooter for her birthday…

Edinburgh August 20115And borrows a tea-cosy as a hat too!

As part of Celeste’s birthday party, my brother and I exhaust ourselves blowing up balloons for a super cool birthday treat.

Edinburgh August 20114So so much fun and definitely the bestest birthday party household ever!

Another visit to the Edinburgh Festival with Iola.  Hmmm the caricature give away that we were trotting around Edinburgh with crazy ‘pretties’ in our hair?   (I’ve since had the picture copied and we both have it up in our rooms).

IMG_6455Finally just a lovely collage of pictures of Iola and I fooling around.

Edinburgh August 20111

Anniversary

I don’t often talk about Mum anymore… or at least not out loud.  I do however go to dial her phone number and remember that she’s no longer here…. or I find myself talking to her or asking her opinion and then worrying that I’m not doing things as she’d want them to be done, or more often get frustrated and pissed off that she’s not here anymore.  I also get upset that she’s not here to celebrate my achievements.

I was recently nominated by two separate people for the Divine Woman Award 2011.  The two people who nominated me don’t even know each other but know me – one from the US and one from the UK.  Astonishingly they also nominated me for slightly different reasons… one for my work within the cancer arena focusing on survivorship, patient involvement and support.  The other for my work within the cancer arena but more particularly for my phyllodes work – finding out more, probing and asking questions, sourcing new information and more importantly my helping others newly diagnosed and through our Facebook group ‘Phyllodes Support Group’.  Divine Chocolate realised that I had been nominated twice and I was shortlisted and  invited, with a plus1, to the Finalists Reception with 5 other entrants.  I didn’t win, but the lady who did was very deserving and amazing… as were the other finalists too.  I went to the Finalist Reception alone because the only person I really wanted to accompany me was my Mum and she’s no longer here.  But I hope she looked down and was proud of me and why I had been nominated and why I was selected from all the entrants to be in the final 6.

Mum fought for more information on Multiple Sclerosis, more research, more progress, more support and more awareness… she used to drive us all nuts in her quest to help and find out more.  I knew why but I used to say to her to concentrate on herself rather than ‘the cause’ and get frustrated that right up until she was no longer able to use her fingers to write and use the computer, she would be writing to medics, politicians and health authorities with information, research or questions.  I now so understand why she did it and why it meant so much to her to know that she had tried to do something so that others behind her may not have to struggle with MS the way that she had.  She was determined to help find an answer as to why this dreadful disease existed and to find a way to relieve the symptoms for others.  I know that she will have made a difference with everything she did… I just hope that I can do so with Phyllodes too.

So Mum, 2 years ago today I watched you close your eyes and soon take your last breath.  I watched you peacefully slip away leaving behind your damaged body on this earth.  You’d had enough of the fight.  I know it was your choice to leave.  But I miss you so much.  Love you Mum.

Checks

OK so there’s a huge chunk of time missing from this journey… I’ve been busy.. some good, some not so good and I promise to update you on all that soon.

BUT, just thought I’d drop by to tell you that today I received the results of my latest follow up mammogram… Not sure why I was so nervous but to say I hardly slept last night would be an understatement! Today wasn’t helped when I was taken into the ‘bad news room’ – there’s one in every clinic around the world… And sat nervously for what seemed like hours before my consultant came in accompanied by a nurse (also not a good sign as usually they’re there when bad news needs to be broken)… Can’t tell you how relieved I was when my consultant (who is the best in the world) said all was clear. He then took the time to check I was ok, felt ok, wasn’t worried and also queried the pains I constantly have – not bad but niggles and remind me what I’ve been through. Anyhow at the end of our chat he said he’d be happier if I continued on my course of follow up appointments of annual mammograms with 6 month interval of ultrasound checks.

Can’t tell you how ‘looked after’ I feel and how, just knowing that I continue to be monitored takes away any anxiety I may have.

(oh and the nurse was there as she wanted to find out if I’d be happy to be part of a clinical trial looking at genetics and familial history for patients diagnosed with DCIS, which they found when they went in for clear margins following removal of my malignant phyllodes. Of course I’m happy to be in any clinical trial that may help others in the future)

Sooooooo I’ve had a couple of cheeky glasses of champers tonight…. Cos I could! Xxx

Olympic ticket confirmation

I’m currently doing a **happy dance**.

For all those people who said that noone would ever get tickets and all those doubters out there, I did!

I’ve today received my notification email to say that I’ve been allocated the following:

2 tickets to the volleyball at Earls Court.
3 tickets to the Modern Pentathlon, Equestrian in Greenwich Park
2 tickets to basketball in the Basketball Arena

I’m v v v v pleased with that selection. Probably only 50% of what I applied for but that’s OK. I’ve tickets that allow me to take my nephew and niece to THE London Olympics. They get to be part of this fantastic event and celebrate it with me. I can’t wait. Bring it on.